Dhaka, Oct 29 (V7N)- Once the rare disease Spinal Muscular Atrophy (SMA) was diagnosed, parents would have despaired. Many would have been frustrated by the lack of guidance as this rare disease requires a combination of seven to eight medical disciplines. There was no opportunity to treat this disease in the country. But due to the sincerity of various parties, it is now possible to provide multidisciplinary medical services in the country. In the very near future, a complete treatment system for this rare disease SMA will be developed in the country.
Renowned neurologist Professor Dr. Quazi Deen Mohammad stated that at the opening ceremony of the 'Neuromuscular Disease Treatment Center' or SMA Clinic held at Agargaon National Institute of Neurosciences and Hospital on Monday.
He also said that several drugs have been approved in the world so far. An oral drug (Risdiplam) has already been approved in Bangladesh. Various parties including the government are working on drug prices and accessories. We hope that the price of medicines will come within the reach of everyone in the future.
He said addressing the parents, you will not be disappointed. It is possible to lead a normal life even with SMC. He requested the riches to come forward. Thanks to Cure SMA Bangladesh. They have come forward. Due to which awareness about this disease is being created in the remote areas of the country.
In this day-long event, Mr. Mark Heeb, country manager of Roche Bangladesh, Professor Dr. Md. Badrul Alam, Joint Director, National Institute of Neurosciences and Hospital Pediatric Neurologist Professor Dr. Narayan Saha, Cure SMA Bangladesh President Shahadat Hossain, Professor Md. Maksudur Rahman Sarkar, FCMA, Accounting and IS Department of Dhaka University, doctors from various departments of Neurosciences Hospital including various senior officers of Roche Bangladesh, representatives of Cure SMA Bangladesh and SMA patients and parents from different parts of the country were present.
Prof. Dr. in the ceremony. Md. Badrul Alam said, SSA is one of the most expensive medical services and medicines in the world. A vaccine for this disease costs about 220 million BDT. Oral medicine has been approved in the country; its price has come down to 3 lakhs. Since it is always consumed, it is not possible for everyone to buy it. Therefore, the sincerity of the government in this matter is very necessary.
Later the 'Neuromuscular Disease Treatment Centre' or SMA Clinic was run. This neuromuscular disease treatment center provides free pneumonia and influenza vaccines along with necessary medical support and guidance to patients from remote areas of the country suffering from the rare SMA disease.
Neurosciences and hospitals, Cure SMA Bangladesh, the only organization of patients and parents working for the welfare of SMA patients in Bangladesh, and 'Roche Bangladesh Limited', an affiliate of Switzerland's Roche Group, cooperated as a scientific partner in organizing the clinic.
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